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In Spite of Pain's Journal
 
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Below are the 3 most recent journal entries recorded in In Spite of Pain's LiveJournal:

Wednesday, May 7th, 2008
9:39 pm
[l_is_for_lupus]
Welcome!
L is for Lupus, an online directory of reviews and recommendations for patients by patients, has officially gone online today.

Bear in mind, this is just the beginning. This site will not be limited to just lupus-related material. I've begun to include Fibromyalgia books and websites to review, and I hope to include other auto-immune diseases as well.

I'm very excited to be ahead of schedule! Please help get this started and write some reviews! Your opinion will help others research their auto-immune disease. I hope to see you there!



Tuesday, April 22nd, 2008
10:00 am
[l_is_for_lupus]
L is for Lupus - reviews+recommendations
Beginning May 15th, 2008, L is for Lupus will be an online directory of reviews and recommendations for lupus patients by lupus patients. An online community/bulletin board is also in the works.

L is for Lupus is currently seeking submissions for books and other items to review. We're not ready to accept actual reviews just yet--that will begin on May 15th. If there's something you would like to see reviewed on L is for Lupus, please let me know by posting below or send me an e-mail!






L is for Lupus on MySpace
L is for Lupus on Twitter
L is for Lupus on Facebook
L is for Lupus on LiveJournal



Thursday, October 25th, 2007
1:09 am
[so_brilliant]
 I'm kind of weary about posting this anywhere, because personally I feel like I sound rather crazy..but, here it goes..

First of all, here's the condensed version of me at the moment:
I've had a migraine for a little over 10 weeks now, with a 36 hour break after being in the hospital for 2 days getting DHE. I've seen over 10 doctors, been on countless meds..no relief.  I also have a few other health issues, including epilepsy, which just complicates matters more.
Anyway, my pain level is usually between a 7 and an 8, and has never gone below a  5.  [a little fyi, what I consider an 8 now, i considered a 10 2 months ago]

Anyway..so here's what happened today...All day, I was doing okay. My pain level was about a 7, and I was able to somewhat function okay.
Then tonight, I went out to dinner with my cousin, and afterwards we went back to her house and just chatted for a few hours. I noticed my pain was steadily increasing the whole time, and by the time she brought me home it had peaked, and I was in tears.
I can't figure out why this is..I wasn't stressed at all..I didn't get too hot or too cold, which can sometimes change pain levels for me..no different foods..nothing out of the ordinary happened. We ate. we talked. that's it.

There's only one conclusion I can come to: Having fun makes my head hurt worse.
This seems absolutely crazy to me.  I go and have a good time, and laugh, and try and ignore my pain and health issues...and I come home in blinding pain.
This isn't the first time it's happened, either. It happens a lot. My pain levels are somewhat tolerable, then I'll go do something (like go shopping) and come home in blinding pain.
I just don't understand, and it's so frustrating.

I feel like I'm going to be stuck in the house for the rest of my life watching the rest of the world live.

Can anyone else relate?
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